As cancer patients we hear " everyone is different", Leading us to believe that any ailments we might experience is truly due to our own bodies inability to deal with treatments or medications rather than more common than not " side effects" from the treatments.
Granted, for some, these treatments are allowing for longer quantity of life, but at what cost to quality? This is entirely a personal choice for each patient.
Most research currently states that even the more aggressive testing and/or treatments do not change the over all outcome for such diseases.
Yet, patients are made to feel that they are some how giving up if they don't opt for any and every option that is out there.
One only has to be a cancer forum member reading posts and quickly common ground of side effects start glaring back at you.
Even with a "No Evidence of Disease(NED)" based on blood work and a cat scan- Women of Ovarian Cancer suffer many common ground ailments after chemo/steroids/ red &white blood cell builders:
Constant lower back pain, lower abdominal aches, chronic fatigue, breathing problems and ongoing bladder and bowel issues. While none of these may be life threatening on their own to deal with them daily makes for an exhausting day with out trying to deal with working or any other additional daily duties that might be needed.
Yet, we get those dumb founded looks from our medical support teams of "not aware of that side effect from anything you have taken for the cancer" REALLY??? When we didn't suffer from those ailments prior to chemo etc.
Even a simple validation that these ailments could be from the treatment would make us feel like we are not aliens from another planet.
Then go and add being on a Trial medication with their own set of side effects to the body that are denied until such time that they decide one must stop the trial because the patient is not responding well to the trial medication. Again REALLY???
Many ladies describe it as being on a never ending roller-coaster ride that doesn't seem to have a " you have completed the ride with success" award at the end.
I admire and my heart goes out to these ladies that continue to put themselves out there in the name of "finding a cure".