After Surgery I was told that the stent would need to stay in for 3 months... so I put a date 3 months post surgery in July to follow up on getting it removed and thought nothing more about it.
From the time the folly catheter was removed, about 5 days after surgery, was experiencing pain when I urinated, but I seriously just so glad to be able to empty my bladder that I decided that my bladder was just getting use to not have the 20 cm tumor and lesions were not pressing on it that it had to get use to working again.
After 10 days I went home and continued to feel as if I had a UTI... was tested and it came back negative but was given a dose of antibiotics. Continued to suffer even worse with each round of of antibiotics.. Since I was was not getting any better I continued to ask is it a possibility it is the stint, both my chemo oncologist and PA kept saying " no" that would not be causing your pain. With each passing chemo cycle the pain and frequency of having to go to the restroom was becoming unbearable even with pain medicine.
I finally went in to see my PA and showed her pictures of the tissue and blood that I pass each time. She was 100% sure it was not my stent... I then begged her to please refer me to a urologist then because something was differently wrong.
When the Urologist saw my results he agreed to see me the next day which was a Friday. Once we started talking and I said I know I am not a Dr. but is there any way that the stent could be causing this... he said of course it could and was 99.9 sure that was what was causing the problem... when I described the systems and explained the cramping each time I urinated he said I have no doubts that it is the stent... He prescribed several medicines to help me cope with all of this until he could remove the stent on the following Monday.
Went to my appointment with great anticipation for some relief. I was given a local deadiner before the procedure. When the Dr. said this is going to hurt you more than it will me and he sorta chuckled was my clue hold on for some uncomfortably pain.
With in 24 hours I was feeling great relief and gave thanks to all that had been done to get me out of this horrible pain.
It is now several months later and I am still blessed to not be having any UT issues. Feeling very blessed.
I often made the comment to friends, when watching those commercials about that why would anyone want to take a pill that had more side-effects to reduce a couple of trips to the restroom.
What they don't show or state in those commercials is those same pills also help with the spasms, cramping and pain that goes along with urinary issues. I for one will always be so grateful for those pills that turn your urine blue.
When our intuition continues to tell us what might be causing a problem continue to have checked out even when the so called experts disagree.