Last week My scan came back that there is 1 cm lesion on my liver.. my gyn/onc wants to do an ultra sound and then biopsy to determine if it ovarian or a 2nd type of cancer, which is scheduled in January.
This spot was not detected or noted on the scan back in February 2016, nor was it seen during the surgery in April 2016. The Surgeon even made the comment she was happy not to see any on my liver or spleen.
However in May 2016 a routine chest scan was done, requested by the Chemo Dr. before chemo treatments were started. She said scan came back clear and no signs of cancer in my lungs.
So today when she reviews the latest scan results she said " if they are saying stable that means it was seen previously" so she leaves the room calls the radiologist and sure enough it was seen back in May, but no note was made to this find. My gyn/onc was not forwarded a copy of this report either even after I made a special request to have the results sent to her.
But she could not answer me when I asked how can I have a lesion that was not there in Feb and April, shows up in May prior to chemo and still shows up after the completion of chemo... she said it just doesn't make sense. It's like this doesn't fit into her version of
She said it is very very rare, extremely rare that it shows up on the liver. When I tried to tell her that in our small group of ladies on a forum that I belong to, that several of the ladies have experienced the liver lesions. Also that many of them experianced their CA125 count to still be in the normal range when they reoccurred, she dismissed that data completely as if to dismiss what I was saying as well.
When I told her that my gyn/onc said he could not consider me NED and that I would be considered chronic and most likely be one of the lucky ones (sarcasum) to endure additional chemo's & trials, she shook her head. The chemo dr said I do not think it is ovarian cancer your marker is still within normal range.. Great, so what do you think it is? no answer was given.
She decided that she wanted to do an MRI right away.. I said no that I would wait to see what the ultra sound has to show in January. Besides all of this, I was told I should never have an MRI due to having so much metal in my body. When I reminded her of this she said 'oh yes, that is right"...
I think at that point she realized I was sticking to my gyn/onc plan.Because she then said I guess you will call me after that test and let me know when we can start Chemo again. With prayers heard, I really hope I will be able to have a say in my next chemo dr's choice.
She maybe right and time will tell but I felt like it was more important to her to be "right" than it was on how this contradiction made me feel.
I have to admit that my trust and loyalty with my gyn/onc is at 100% while the chemo/onc is far, far less.
My take aways from this experiance was:
I did learn to speak up for myself and trusted my intitution on not letting her "run" the show for the purpose of having something to prove.
Seeing both the pro and cons of having 2nd opionions when reading CT Scans.
#OvarianCancer #liverLesion #ctscans